Caucus Disability Open Thread

Submitted by The Aspie Corner on Wed, 05/25/2016 - 8:07pm

I just posted my GBCW diary at TOP. When I said I wouldn't be posting disability stuff there, I meant it. With that out of the way, I'd like to start something new here: The Disability Caucus.

Disability is something that can affect anyone at any time, anywhere. And as I've stated plenty of times, I've had to deal with it, and the system associated with it, since birth. I'm sure I'm not the only one.

So here's what I'd like to do with this thread: Spread awareness, and perhaps provide support. Because the elements know we could certainly use it considering the government and society at large has turned its back on us in many ways.

With that being said, I welcome any ideas anyone might have for this endeavour.

Thanks,

Aspie

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Submitted by Damnit Janet on Wed, 05/25/2016 - 8:13pm
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I read your GB diary there, sadly I read some of the comments. That place has really gone down the stinker.

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Submitted by The Aspie Corner on Wed, 05/25/2016 - 8:18pm
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They wanted an echo chamber...well, they're going to get it.

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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by stevej on Wed, 05/25/2016 - 8:41pm
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the responses to the doary in question along with Valtin's turned my stomach. In a way they summed up TOP perfectly. The place is losing superb diarists and gaining boatloads of snide and dismissive idiots. The disrespect for serious writers is absolutely gobsmacking.

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Submitted by Damnit Janet on Wed, 05/25/2016 - 8:47pm
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it got pretty pathetic, pretty fast.

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Submitted by stevej on Wed, 05/25/2016 - 9:43pm
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The majority were just downright spiteful.

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“To learn who rules over you, simply find out who you are not allowed to criticize.” -Voltaire

Submitted by detroitmechworks on Wed, 05/25/2016 - 8:14pm
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Course because I LOOK fine, I get the standard "Freeloader" accusations.

Some folks just don't know what it's like not to leave the house for weeks because of fear/PTSD.

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Submitted by The Aspie Corner on Wed, 05/25/2016 - 8:21pm
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to be liberal or progressive. Sad, isn't it?

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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by detroitmechworks on Wed, 05/25/2016 - 8:23pm
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Limousine Liberals...

Until they took over my old favorite site.

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Submitted by The Aspie Corner on Wed, 05/25/2016 - 8:36pm
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These folks often come from areas that have seen heavy gentrification in recent years.

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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by Damnit Janet on Wed, 05/25/2016 - 8:40pm
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that's a brilliant name for them.

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Submitted by thanatokephaloides on Wed, 05/25/2016 - 8:25pm
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Those who sneer at the disabled are neither liberal nor progressive.

Diablo

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"US govt/military = bad. Russian govt/military = bad. Any politician wanting power = bad. Anyone wielding power = bad." --Shahryar

"All power corrupts absolutely!" -- thanatokephaloides

Submitted by thanatokephaloides on Wed, 05/25/2016 - 8:23pm
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And I know well the looks of disgust, although perhaps not as well as you do, DMW.

Just trying to make an honest life and an honest living can easily grind you to pieces, especially if flesh-destroying bacteria (MRSA) have their thumb on the scale.

Sad

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"US govt/military = bad. Russian govt/military = bad. Any politician wanting power = bad. Anyone wielding power = bad." --Shahryar

"All power corrupts absolutely!" -- thanatokephaloides

Submitted by detroitmechworks on Wed, 05/25/2016 - 8:25pm
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It gets insane sometimes. (Loathe the occasional month I have to go to the food bank to keep the power on.)

As it is, I know I need my medication but sometimes... It gets kinda stupid. (Haven't taken it in a week because my my lighter ran out of gas and I'm broke till the 1st...)

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Submitted by magicsister on Wed, 05/25/2016 - 8:39pm

I've been in a similar situation myself. Please let me know if I can help in any way. I usually have extra cash in the last weeks every month. It shouldn't take much for lighter fluid. It would, naturally be pay it forward.

This year I've experienced all of my meds going up in price. One went from $24 to $349. Others were almost as bad.

Chained CPI screwed us, then they raise the prices.

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'Well, I've wrestled with reality for thirty five years, Doctor, and I’m happy to state I finally won out over it." Elwood P. Dowd "

Submitted by detroitmechworks on Wed, 05/25/2016 - 8:47pm
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And I use disposables, so that's usually not an issue... Just ran out this time when the kids had mandatory school events which required late night cab rides.

My medication is Cannabis, and I'm usually good for 1-2 months with 50 bucks. (Legality is AWESOME!) Problem is finding a good strain. So far the Four I've found that work are Blueberry, Blue Cheese, Blue Diesel, and Purple Monkey Balls.

But then, once again, it's dependent on finding a good dispensary... (One close to work is GOOD but expensive. The cheap and good one is down in Milwaukee and off the bus line... Sad )

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Submitted by Damnit Janet on Wed, 05/25/2016 - 9:10pm
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at mine they offer 10% off.

Leafly is an awesome site to look up strains: You can search by mood or diagnosis.

Biggrin

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Submitted by detroitmechworks on Wed, 05/25/2016 - 9:14pm
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My personal chemistry is a little weird. Indica hybrids are the best for keeping me awake and aware. Too much THC and I just pass out. Too little and I feel no effects at all.

Still shopping around town for the PERFECT place. (The Milwaukee one Ran out of Blue Cheese 6 months ago, and I REALLY miss that strain. Was probably the best)

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Submitted by Damnit Janet on Wed, 05/25/2016 - 9:17pm
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Blue Dream. Daytime, pain, stress.
edit: any dispensary that is "legit" should have this staple strain. If they don't, getcher ass elsewhere. And there's a huge diff between pot shops and medical marijuana dispensaries.

Also edited due to your upthread post: Blue Dream is a hybrid - Ind/Sat, and if a strain has too much THC for ya you can always mix in a bit of some high CBD strain into your bowl or what have ya. Biggrin

Strawberry Cough: Anti-anxiety, PTSD, daytime
Lemon Skunk: Daytime, Stress, OCD, PTSD

the last two are strains my son uses in a tincture for autism/anxieties.

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Submitted by detroitmechworks on Wed, 05/25/2016 - 9:17pm
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Sold me a strain that didn't work at all... Sigh. Fortunately, I stuck to my rule of only buying a quarter of anything new, just in case, and it was the right call in this case.

Haven't tried Blue Dream, but will look for it the next time I need a refill. (Still good for a long while with my PMB... except for that damn lighter running out...)

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Submitted by magicsister on Wed, 05/25/2016 - 8:40pm

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Submitted by mimi on Wed, 05/25/2016 - 8:46pm
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the system and get food stamps. The dirt couldn't be more sticky. It's amazing how little control the bureaucrats have over their programs and are not able to control its abuses.

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Submitted by The Aspie Corner on Wed, 05/25/2016 - 8:30pm
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and certification and re-certification. It's all a pain in the ass.

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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by Damnit Janet on Wed, 05/25/2016 - 8:50pm
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even if you get lucky to get on the job training, you're subjected to intimate questions about hygiene skills and living skills... from a prospective employer.

Q: can you use the bathroom yourself? if yes, do you need assistance in any of the following...wiping, handwashing.

A: Dude, I'm here for a low paying job, usually lower than minimum wage because somehow it's legal to underpay disabled workers - that involves picking up the cigarette butts and other bits of trash in your parking lot....

No dignity. Nothing.

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Submitted by The Aspie Corner on Wed, 05/25/2016 - 9:00pm
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and other stupid things they put you through just to keep receiving services. It's mind-numbing.

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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by detroitmechworks on Wed, 05/25/2016 - 9:02pm
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They used to pull that in CA when you asked for help finding a place to live. "Come to our 'Housing Search Group', you can network!"

Almost lived with my folks for 10 months because of that. It was only thanks to a great guy here in Portland I got out of CA.

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Submitted by riverlover on Wed, 05/25/2016 - 8:23pm
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and may be permanent (arthritis, anyone?). I had a vestibular complication, undiagnosed for 6 months. Walking was scary, negotiating down stairs enough to cause panic attacks. PT (mostly visual) brought me back, bless you, Annie. Try living alone with one functional arm for two months as well. This will be helpful to many.

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Hey! my dear friends or soon-to-be's, JtC could use the donations to keep this site functioning for those of us who can still see the life preserver or flotsam in the water.

Submitted by The Aspie Corner on Wed, 05/25/2016 - 8:33pm
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The left side of my body is much weaker than my right. And I can't move the toes on my left leg and the left leg is about 3/4 of an inch shorter. I just love dealing with the back pain that comes with that. Even with a raised left shoe and a carbon fiber AFO.

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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by thanatokephaloides on Wed, 05/25/2016 - 8:39pm
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After a certain age, transient disability is likely and may be permanent (arthritis, anyone?).

Speaking. Permanent flavor. Knees, hips, lower spine, feet.

I had a vestibular complication, undiagnosed for 6 months. Walking was scary, negotiating down stairs enough to cause panic attacks.

This will be helpful to many.

Reading your message had me search "vestibular complication". Found out a lot about another problem I'm facing these days. In particular, this website was a great help!

Thank You, riverlover!

Give rose

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"US govt/military = bad. Russian govt/military = bad. Any politician wanting power = bad. Anyone wielding power = bad." --Shahryar

"All power corrupts absolutely!" -- thanatokephaloides

Submitted by MsGrin on Wed, 05/25/2016 - 8:24pm
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We met weekly for coupla three years or so on TOP. Great group. It eventually faded.

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Submitted by The Aspie Corner on Wed, 05/25/2016 - 8:41pm
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now that it's scorched earth Hillary-at-all-costs.

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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by JtC on Wed, 05/25/2016 - 8:42pm

add the open thread tag and it will show up in the OT Feature menu in the right sidebar where it will get more exposure.

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Submitted by elenacarlena on Wed, 05/25/2016 - 9:06pm
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chemical sensitivities here. No idea how to turn this into a full-fledged caucus. JtC?

I went over to TOP and your tip jar was hidden so I tipped it, but it's still hidden. Anyone else want to chance a tip?

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Submitted by geebeebee on Wed, 05/25/2016 - 9:13pm

I can't bear to go back to TOP to see your diary, but you're making the right move. Those assholes don't deserve your skill, or anyone here's skill.

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Submitted by congenitalefty on Wed, 05/25/2016 - 9:18pm
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I still stop by to rec up BNR and other worthy items. Good stuff still appears outside of the primary diaries.

But DK has made itself utterly useless to anyone interested in progressive politics.

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Submitted by detroitmechworks on Wed, 05/25/2016 - 9:21pm
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Good work is always appreciated, and I refuse to give TOP any more hits.

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Submitted by The Aspie Corner on Wed, 05/25/2016 - 9:44pm
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Modern education is little more than toeing the line for the capitalist pigs.

Guerrilla Liberalism won't liberate the US or the world from the iron fist of capital.

Submitted by Steven D on Wed, 05/25/2016 - 10:51pm
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Having a flare of my autoimmune disorder. Not feeling all that great at the moment but appreciate you starting this here. Much love and solidarity.

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Submitted by Phuq Yew on Thu, 05/26/2016 - 1:00am
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Yo guys and gals...

I am disabled with congestive heart failure, bad back, gout and diabetes. At least I have family nearby and I am in HUD subsidized housing (interesting story by itself...) and on SSDI; Social Security Disability Insurance, although it has been frequently misunderstood as SSD Income. That is a rather accurate misunderstanding. Smile

Americans with Disabilities Act recognizes deafness as disability due to social and communication barriers.

That is why I did not mention deafness in my opening sentence. Been deaf my whole life. I gots stories and all about that...

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Submitted by snoopydawg on Thu, 05/26/2016 - 1:38am
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You couldn't be more wrong about ‘this caucus99’ site.

Lit was created over 18 months ago and has been growing constantly since it was created. There are many great writers there and the topics presented are the types are f topics that this site used to have before it became Trump and republican central.

Especially the Evening Blues which joe shispack puts a lot of effort in bringing articles to our attention like Daily Kos USED TO DO.

The amount of hate that I read in comments here is something I would expect from websites like Red State.

As elenacarlena wrote, there's no childish hide rates because someone disagrees with what someone else wrote.

So go ahead and keep deriding people who don't agree that Hillary will be good for this country or the world. It shouldn't take long for people to see what she will do and who she will actually represent. Look at the people who she already has advising her on economic and foreign policies.

The same people who helped crash the global economic crisis are advising her and the people who wrote PNAC like Kagan and others are advising her on her foreign policies.

you do remember when the people from PNAC sent the military into Iraq, right!

As for the rest of the people who are cheering about people leaving this site and leaving nasty comments, shame on you.

You are acting like little children and hopefully one day you will grow up.

Assholes on Kos that are laughing about this site and wrote rude comments about homer leaving the site.
I flagged a few of the more nasty ones. One person wrote GTFO already.
The reason why people are getting bolder at writing comments that used to been HR'd is because they are seeing what Markos is writing and giving people permission to be dicks.

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Which AIPAC/MIC/pharma/bank bought politician are you going to vote for? Don’t be surprised when nothing changes.

Submitted by detroitmechworks on Thu, 05/26/2016 - 1:44am
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[video:https://www.youtube.com/watch?v=OE5FO5YZoNw]

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