Open Thread - Friday, September 30, 2016
To me, it really seems visible today that ethics is not something exterior to the economy, which, as technical matter, could function on its own; rather, ethics is an interior principle of the economy itself, which cannot function if it does not take account of the human values of solidarity and reciprocal responsibility.
~Pope Benedict XVI~
The caregiver responsibilities are wearing me out. Sweeties ALS has taken a step change. She is no longer able to take anything orally. Late last week, she tried to have some yogurt, gagged and spent the weekend trying to aspirate. She finally cleared her lungs Monday. Her neck muscles are weak and using the head mouse is iffy, so there has been very little text to voice communication. I ask her questions, but it is really tough to decipher whether the answer is yes or no. She has been sleeping 10-11 hours at night, cat napping and being very lethargic. Based upon discussions with the neurologist, I think this may be the final descent. I don't know how long the descent will be, but I have let her siblings know that she has started to decline toward coma. Today, I think I will play Sweetie's favorite music.
I have checked out of society. I ignored the debates, rarely get onto the Internet and rarely get out of the house. It is not a purposeful thing, I just tend to vegetate in between periods of high demand. Sleep is hard to come by, I am physically beat up and emotionally drained. Sometimes I just need to stare at the rug.
I am ready for Sweetie's passing. I dread it, but it is time. Going on like this is no way to live. I have been procrastinating about final arrangements and probably won't do anything until I have to. Likewise, the remainder of my time.
One thing is for certain, I intend to get back in the saddle. So, watch out, I could be coming to a town near you. I will be all alone, so I will have to get out and bug other people. Short of being cold and starving, I do not intend to go back to work, so it will be my responsibility to keep other people from working.
That's all I have and it's getting late. Have a great weekend!
The thread is open.
Comments
I'm listening along with you
to Sweetie's favourites, which are some of mine as well. I hope the music eases some of the pain for you both.
If your future travels ever involve crossing hemispheres, know there is a place welcome for you here.
Love and peace ...
Peace to you
and your Sweetie, Tim. While I have not gone through what you are now, I watched my mother when she was my father's caregiver until his death from Alzheimer's a year ago. She was both physically and emotionally exhausted. It drains a person in every way but you can and will recover. One year later, my 94 year old mother is back to being healthy and vibrant. My thoughts are with you and your Sweetie. May Peace be a part of these last days. Sending positive vibes and good karma your way.
Do I hear the sound of guillotines being constructed?
“Those who make peaceful revolution impossible will make violent revolution inevitable." ~ President John F. Kennedy
I spent much time staring at a tree in my yard.
Time compresses and expands for you? How are your children holding up, or can you tell? Yesterday, 6.25 years after he died, I got a robocall from the cardiologists' office asking for data from his implanted defibrillator. I have tried to stop those calls, I get blank looks from the office staff. I returned the phone connection within 2 weeks of his death. I have no idea what happened to the defibrillator, fantasize that it went to some lucky dog. It got revisited yesterday.
Peace stay with you both, as much as possible.
Hey! my dear friends or soon-to-be's, JtC could use the donations to keep this site functioning for those of us who can still see the life preserver or flotsam in the water.
Good morning, Tim.
Sweetie is one lucky woman to have you as a life partner. Your dedication to her life is what dreams are made of. I understand you are ready for her passing. The person you knew passed long ago and what you see now is not quality of life.
I had a spouse pass immediately from a heart attack. As hard as it was, I was grateful he did not linger and suffer.
We all have our burdens to bear. Doing them with gratitude brings a balance to life. I support you.
Find your joy today.
"The “jumpers” reminded us that one day we will all face only one choice and that is how we will die, not how we will live." Chris Hedges on 9/11
My mom hold the hand of my father laying at his side
til he passed. There was strength to hold his hand, but enough weakness in her to need to lay down.
May you both hold hands in peace, side by side.
https://www.euronews.com/live
Hug Sweetie
while you can, the best you can.
And ditto on the travels, if you head toward NoHum, PM me and we'll talk.
Be well, and be loved, Friend.
Ya got to be a Spirit, cain't be no Ghost. . .
Explain Bldg #7. . . still waiting. . .
If you’ve ever wondered whether you would have complied in 1930’s Germany,
Now you know. . .
sign at protest march
I am with you, Tim.
Sweetie's suffering should end. Life is fair only if death is, too.
You are a remarkable human being, which also says a lot about Sweetie.
"We'll know our disinformation program is complete when everything the American public believes is false." ---- William Casey, CIA Director, 1981
Wishing you peace....
My mom was the last to die in 2008, but the memories of what my mom, dad, and I went through for 10 years as I worked with them both through their lives end still cause me remorse, sorrow, and anger. I hope your memories of this period in your life brings you peace and happiness.
"Religion is what keeps the poor from murdering the rich."--Napoleon
From a Bernie blog to an anti-Clinton blog.
Morning Tim, Your attitude is rock solid. Appreciate your sharing. Hang tough.
and so
you will continue being a bodhisattva:
See you, in the Allegheny. ; )
not following politics? not missing anything!
sending good vibes, Tim. Sigh....
You are well beyond admirable, thanks for the post & music.
When you start your rambling don't forget California, I hear it is always "nice this time of year".
That, in its essence, is fascism--ownership of government by an individual, by a group, or by any other controlling private power. -- Franklin D. Roosevelt --
Blessing on you, Tim.
And prayers for the two of you.
There are a lot of C99ers in Portland, OR vicinity. I may have a spare room if you come this way.
More disaster in Somalia
U.S. troops under attack in Somalia
Except those weren't terrorists
meanwhile, children starve