What Admitting My Wife to the Hospital Taught Me About What's Wrong With America (Revised)

[video:https://www.youtube.com/watch?v=i5rgA1mAphw]

Clara, my wife of 30 years, was hospitalized Wed. night. My son and I took her to hospital ER at 11 pm, after she was found coughing up blood and had a blood sugar level over 900, an extremely high and potentially fatal condition.

Clara had been fighting a bad respiratory infection complicated by asthma for two weeks prior to this crisis. I finally convinced her to go to the doctor on Monday, Dec. 12th. He prescribed an antibiotic and a steroidal asthma inhaler. She began having chest pain Wed. night. What we didn't know was she had stopped taking her insulin and eating because she felt so sick and nauseated. Her weight dropped to only 95 pounds, dangerously low for a Type 1 diabetic. Once she started vomiting up blood we contacted the on call doctor who said to take her immediately to the ER.

When I admitted my wife to the hospital at 11 pm that night, we experienced expressions of contempt from several members of the hospital's intake staff, including nurses. They did not understand why my wife, who was screaming and incoherent and having a panic attack due to her chemo-induced brain injury was in no state to answer their barrage of rapid fire questions about why she needed their help.

She was overwhelmed by all the stimuli an ER Room generates: loud beeping noises, people shouting and running about, loud TVs playing and caregivers asking rapid-fire questions too fast for her to process during her long night of pain, terror and sensory overload. They just assumed she was bad news, possibly a junkie (she certainly looked the part due to her weight loss) and that I, as her husband, was terrible person, as well, for not being able to give them what they needed off the top of my head to complete their intake procedure before they would admit her and treat her.

To them, we were a waste of space, and a waste of their valuable time, time that could be better spent on other patients. They demonstrated this contemptuous attitude in many ways, but the effect was to make us feel that that they considered themselves our superiors, people who were beneath them. Needless to say, certain individuals did not treat my wife well during that required intake process.

I know that the intake people were having a busy night, but if they had taken the time to hear me out and let me explain why all the lights, noise, and general insanity of an ER room made it impossible for her to answer their barrage of questions and demands, it would have made a big difference.

Thereafter, I made a point to explain to every nurse, technician, doctor and other member of the hospital's staff who saw or dealt with her that night of (1) the brain trauma Clara had suffered, (2) the cognitive issues she deals with because of it, and (3) what they, as medical professionals needed to do to help her. To be specific, I asked them to please talk slowly, repeat themselves if necessary and don't make assumptions that just because she is acting out in response to loud noises, bright lights or their interactions with her that it meant she was some drug-addled crazy person.

I also made it very clear that her brain trauma resulted from her chemotherapy for pancreatic cancer (5-FU was the medicinal culprit), so that also got people to turn up their empathy meters a little higher. It's strange, or maybe not so strange, but using the "cancer card" usually helps a lot with getting people to listen to me when I explain why Clara has unique needs that require a different approach to her treatment for medical issues than someone else who does not have such a severe cognitive disorder.

Recently, as I reflected upon that nightmarish experience only a few days ago, I had an epiphany.

Contempt is perhaps the the worst emotion one person can feel toward another. It is the one that most increases divisiveness in personal relationships. We know this to be true based on studies of marital couples and other close relationships.

And an outbreak of contempt for others has broken out in our society over the last few decades; one that I contend is exacerbating divisions among the many peoples of our country. Many of us express contempt for others daily in part because politicians propagate this attitude with the assistance of our traditional media. Such negative memes are then spread through social media, often by people paid to generate and stir up these powerful negative emotions online. It leads many of us to hide out in our own little bubbles, dismiss the opinions and beliefs of others, and hold people we know next to nothing about in contempt.

And why do we that? Because of the lies and disinformation that reinforce lazy thinking and the easy acceptance of stereotypes with which we have been inculcated from birth, lies and false narratives we have all been told about "those people," lies fostered and spread by the people in power who wish to keep us divided.

One can forgive anger, even hate, even murder, as the families of the victims of the Dylann Roof massacre have shown.

However, contempt - the expression of disdain, disgust, revulsion and for lack of a better term, that "holier than thou attitude" by those who express it openly toward those they find unacceptable - causes tremendous emotional pain.

It is the one act that is often hardest to forget and forgive, because it is so demeaning to those who are being reviled and relegated to sub-human status. Contempt, even more than hate, contributes to the willingness of so many Americans to cheer the suffering of others, even the outright murder and abuse of innocents, because that suffering is happening to someone else they despise, i.e., "one of those people."

Whether fostered and nurtured through factional strife, spiteful political discourse, absurd and dangerous assumptions about others based on someone's race, religion, class or any of the many categories people use to label other people and place them in nasty little boxes where the worst thoughts and prejudices about entire communities and groups may be taken as God's own truth, it is a great evil.

The all too frequent public expressions of contempt, revulsion, disgust and disdain for those with whom we disagree, and who in like manner may hold us in contempt, as well, is devastating our nation. The spread of this poisonous emotion, along with its attendant behaviors, throughout our society is frequently based on a single characteristic or "deplorable" political opinion. It keeps many Americans, who otherwise have so much in common, from uniting and fighting together against the powerful elites who hold the real power over us all. Wealthy elites, regardless of party affiliation, would like nothing more than to see all of us at each others throats, rather than unite in solidarity to make this a better country and a better world.

If we are to salvage this country after the disaster of 2016, this is one of the most important things that we need to eliminate from our public and private discourse. For how can you ally with other individuals and communities to achieve outcomes that are mutually beneficial to all, if so many people's default position is to be contemptuous of the ideas, experiences and cultures of communities and individuals of whom they know nothing but what the distorted lens of prejudice and propaganda shows?

For contempt shuts off any chance of dialogue and finding common ground. It keeps us all in bondage to a greater or lesser extent. Contempt serves the interests of the rich and powerful, not the rest of us. We need to reach out to those who are different from us in any way, and not demean and despise them. We should not dismiss out of hand their grievances because we are so certain of our rightness, our moral superiority or simply our self-perceived greater knowledge and intelligence regarding the proper course of action needed to fix our country's many, many seemingly intractable problems.

To refuse to put aside our own feelings of righteousness, and our belief that those who disagree with us are worthless, ignorant and possibly immoral idiots that deserve only our scorn, is to accept the continuation of the war of all against all. It will inevitably take us down a path that will result in furthering the pervasive corrosion and decay of society, and dash any hope for a better, more equitable and sustainable world.

For if we fail to change these inimical attitudes, fail to stop scapegoating others for the flaws inherent in our culture, and our financial and political systems, we shall surely end up living under a tyrannical and repressive government, suffering from ever worsening economic hardships, and watching our world descends into ecological and environmental collapse.

Count on it.

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PriceRip's picture

          I have been on both sides of this many times.

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Bollox Ref's picture

I remember, way back when in the '80's, as an assurance clerk in London, writing letters for information and waiting several days for an answer, which was standard practice. The world was a lot slower........... and a lot less stressful, but stuff got done. A phone call was as compelling as things got.

Good luck to you and your wife.

(Edited)

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Gëzuar!!
from a reasonably stable genius.

Now, allow me to one up you.
My husband had cancer that we didn't know about. We did know his bladder was infected, and his temperature was in the killing zone.
Off to the er we went. He was taken in to the room, them sent to the hospital room in fairly short order.
While I was there, a Mexican woman, pregnant, was hustled in, out, and the nurses paid for her taxi fare to get home.
They laughed. Said "those people" come here all the time with no money, no insurance, and we nurses just get them gone asap.
My white husband with Medicare got a room.
I have worked for a couple of nurses since then who agree with that program.
They have approval from the top.
That's what they do.
This took place in Conroe Regional Medical Center, Conroe, Texas. 1997/1998.

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"We'll know our disinformation program is complete when everything the American public believes is false." ---- William Casey, CIA Director, 1981

Steven D's picture

But not surprising, not anymore.

Thanks for sharing that story. It reinforces my basic point. A brain injury didn't make my wife a lesser person. It revealed her inner strength. But if we are to be judged solely by appearances when we are at our worst, and sneered at, where is the decency and dignity in that?

Luckily my wife doesn't remember much of that horrible night. But I do. I made it a point after that to go to great lengths to explain to the nurses and doctors my wife's medical history and why her behavior was justified under the circumstances. Most of them eventually got it. But each time they moved her to a different room or floor we have to start from scratch.

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"You can't just leave those who created the problem in charge of the solution."---Tyree Scott

Raggedy Ann's picture

My SIL is a cancer nurse in TX and says the exact same things. You have cancer and no money? Into the de-population pile you go! You should hear her spouse talk about public education - there shouldn't be any!

They both disgust me and I cut them out of my life in 2011. Diablo

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"The “jumpers” reminded us that one day we will all face only one choice and that is how we will die, not how we will live." Chris Hedges on 9/11

The value of humans in this country is determined by the size of their investment accounts.
Doesn't everyone get it that rich people are the smartest, best, and most deserving and make way for them to let them go first in line, even if they determine it is a line of one?

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"We'll know our disinformation program is complete when everything the American public believes is false." ---- William Casey, CIA Director, 1981

MsGrin's picture

Not quite sure what they considered my crime to be, but they figured out a piece of things on the following ER visit a few days later. Somehow, dehydration was making me feel I was blacking out. I was drinking a 'normal' quantity of water for me, but a new-ish medication was messing with my hydration.

You guys did not deserve than, Steven.

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'What we are left with is an agency mandated to ensure transparency and disclosure that is actually working to keep the public in the dark' - Ann M. Ravel, former FEC member

Just when your wife & you most needed compassionate understanding from professional caregivers, you got such terrible treatment.

My mother was two and her brother under one in 1914 when they both contracted polio. My grandmother had a stroller built to accommodate both of them and a shopping basket so she could go shopping. My mother recounted for me her memories of most people on the streets crossing the street so as to not pass them. Those were the best reactions to them. The worst were the people who threw rocks at them. I was a child when she told me about this, and it was hard for me to believe that such a thing could happen in my beloved New York City, still at that time the largest city in the world.

Now, unfortunately, I am not even surprised by your experience. I do urge you to write a letter of complaint to the head of the hospital. Without national health care, our hospitals do feel that they must be competitive with other hospitals, and I think your letter may trigger some positive changes in policy and staff "development." I have had some successes. My local hospital became completely latex-free after one of my letters. Also, certain charges for unnecessary ER services were deleted from my bills.

My thoughts are with you.

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Yellerdog's picture

I do hope they got your wife stabilized and that she is in better shape.

It's a phenomenon, propagated by politicians and the media, both social and mainstream alike, that leads us to hide out in our own little bubbles and hold others we know nothing about in contempt..

I fully agree. With social media it's very easy to denigrate a person, group or an entire region when you never have to look someone in the eyes. We are a fractured world and I wish I knew how to heal it. This is the second story I've read today on a similar theme. It's a start.

Peace

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Alligator Ed's picture

Like Price Rip, I have seen this from both sides. Being a physician, this type of behavior distresses me enormously. Disdain for another's plight is totally antithetical to the precept of the founder of Medicine, Hippocrates. "To cure at times, to relieve sometimes, to care always." The lack of care in medicine is not the exception, not the rule. With "tort reform" which basically means taking the injured patient's (or heirs) rights to appropriate recompense for the benefit of insurance companies (because after all, the insurance companies pay for all of the legal fees and damages), has come a decreased unwillingness to be civil, soothing or compassionate--qualities which should not be monetarily determined anyway.

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PriceRip's picture

          As a professor I have often interacted with students undergoing life changes.

          On one occasion a student approached me near the end of a semester. Her father had been (for some time) treated for cancer. She had been acting a bit distracted, so this revelation wasn't as shocking as it might have been, if that makes any sense. She wanted to know about the experimental (particle physics) treatments with which I was familiar. She described what she understood of what the doctors had explained to her. But It was clear to me that she didn't really understand the significance of that information. So, the first thing I did was to contact my research colleagues (on the west coast) to make sure I was not missing any detail. Then over the next few days I talked her through the details that she needed to know but had not internalized. This was probably the most difficult set of conversations she had ever had in her life. In the end I think knowing the awful details helped her get through the next few weeks. She left school before the end of the semester so she was there "for the end". I did see her once that next semester, she seemed to be at peace.

          The point of this story is: Even the best doctors sometimes do not, in a way that really is effective, communicate with those that need the information . I have no way of knowing if this young lady really understood the full significance of what was said in our conversations. I do know that she seemed to "get it" by the time she left campus that fall. This happened early in my career and haunts me to this day.

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I hope something good comes your way soon, Stephen.

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Lookout's picture

hospitals will be about health and not profit. As long as our medical system is based on profit, care of people will NOT come first. The other obvious thing to do is train more doctors (like they are doing in Cuba). Oh but that might effect the bottom line of the doctors.... All the best to you and your wife Steven. I hope all is better now!

Fall-2009-Physician-Compensation-Worldwide-Chart2.png

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“Until justice rolls down like water and righteousness like a mighty stream.”

gulfgal98's picture

I think that there is a general desensitization of our population in all ways. For example, war is no longer horrifying as long as it is in some far off country. I do not know if it is simply a coarsening of our values on purpose or if we as a people are simply overwhelmed with negativity and it affects the way in which we interact with one another.

Our entire medical system is based upon profit first and "care" further down the line. If we had single payer and removed the middle man from the system, some of the issues we see that have bled across the medical care filed would be greatly diminished or perhaps even go away.

But I witnessed it even as far back as the late 1980's. I used to run with a group on Wednesday evenings every week. One evening, I had a bad fall running with the group which resulted in my hitting the ground face first and knocking out a tooth. A friend took me to the emergency room where it was obvious that I needed immediate attention as my mouth was swelling up rapidly. I asked for ice and was refused by the intake people. By the time they got to interview me, my mouth was so swollen that I could not speak clearly. Eventually when I got into a room, they brought me ice, but by then, it was too late to prevent the swelling.

What I personally witnessed was a lack of compassion. Now what you have witnessed is how that lack of compassion has morphed into contempt. It not only speaks poorly of the hospital, but also of us as human beings when we can no longer care about a stranger's well being first without making judgments about them. I am so sorry this happened to you and your wife.

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Do I hear the sound of guillotines being constructed?

“Those who make peaceful revolution impossible will make violent revolution inevitable." ~ President John F. Kennedy

elenacarlena's picture

Of course they should do much, much better. How is your wife now?

I agree that you should write a letter of complaint to the head of the hospital. Be sure to tell them what you want - retraining? some amount knocked off your bill? apologies? heads to roll?

My Dad once got up the gumption to write to an airline that had treated him and my mother badly, but he only asked for an apology. I told him he should have asked for a refund. He said maybe they'd offer one.

But no, of course, they just wrote him back with his apology as requested. He didn't feel much better - it's too easy for someone who wasn't even personally involved in the snafu to write words of apology after the fact.

In any event, maybe next time they'll be a little more compassionate, even if it's just because they don't want a tongue lashing from Admin.

Healing hugs for you and the missus. {{{Steven and Mrs. D}}}

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Steven D's picture

She has more tests scheduled for tomorrow there, however, so we still don;t have any time frame on when she can get out of jail - I MEAN THE HOSPITAL Smile

She's in a much quieter room now with a quieter roommate so that helps, because all the noise and stuff was triggering her cognitive issues. So we are hopefully optimistic she will be home for Christmas.

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"You can't just leave those who created the problem in charge of the solution."---Tyree Scott

Home is the very best place for everyone now.

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elenacarlena's picture

Would headphones and an iPod or some such help in noisy situations like that in the future, so she's listening to music rather than noise?

Do work toward coming home before Xmas - honestly, hospitals are short staffed on holidays, it's the worst time to be there - even if she had to go back later she'd probably feel better and have better care at home.

Keep us posted, K?

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Steven D's picture

they haven't always worked as well as she liked, and so she hasn't used them much.

I will keep everyone posted. Should know more after big test Monday.

Thanks, Elena

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"You can't just leave those who created the problem in charge of the solution."---Tyree Scott

First, I'm so sorry that your wife is having so many problems and is so sick. The burdens the two of your bear are heart-rending. I hope the care your wife is receiving is making up for the experience you suffered in the ER.

If you have the time and energy, writing a complaint to the hospital head would be a good idea. Hospitals must maintain accreditation from an oversight body called JCAHO to be eligible for some payments and contracts. Part of this accreditation process is a formal response procedure to complaints. This involves administrators' time and energy, and thus inconveniences them. They dislike having to deal with complaints, but they have no choice. As a result, people are held accountable to written complaints in ways that don't happen otherwise. I frequently advise patients who have undergone anything like what you have to file a written complaint. It won't undo what your wife went through, but it may help others who cross the door of that ER in the future.

Your larger point about contempt is vitally important. In the essay I wrote recently I pointed out how Divide and Conquer is so basic to the disenfranchisement people suffer in an oligarchic political system. Pitting one group against another, and dehumanizing that Other is the basic technique involved. We will never have a better country or a better world until people can unite against the powers oppressing them to take back control of their fates. Love and empathy are the critical factors in making that happen. Hate, fear, greed and contempt are inimical to political solidarity, and make us lesser as individuals as well. You put your finger on something very profound in this essay. Thank you, and best wishes for a speedy recovery to your dear Clara.

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Please help support caucus99percent!

In the 80s the head administrator of our hospital proclaimed that hence forth patients would be called customers.
The hospital was to be run as a business and not as a healthcare facility. Hospital staff has seen their wages stagnate and their numbers slashed. When workers complained about the changes possibly hurting patients, we were told that the number of customers hurt was not statisically important.
I am so sorry that you and your wife had to endure the horror of modern American healthcare. There are still dedicated healthcare workers out there who still give a damn , but they they are fewer in number, over worked and strangled by the business SOP.
I pray that your wife is feeling better. If you live in state that has medical Cannabis, maybe it would help.

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Steven D's picture

They are very restrictive as to what qualifies for use of medical marijuana.

She does not fit within any of the categories. Otherwise our PCP would have authorized it for her.

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"You can't just leave those who created the problem in charge of the solution."---Tyree Scott

Unabashed Liberal's picture

sorry that your family had to ensure such a dreadful experience.

Agree with sfern that a letter of complaint (at the very least) is in order. Please keep us informed of your wife's progress. Take care.

Mollie


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Yellerdog's picture

I'm finding the constant drumbeat of the impending Trumpian disaster very overwhelming. Until now I had never actually considered that progressives are also being paid to generate negative stories that while they may not be fake are certainly filtered through a bias and designed to constantly agitate readers to keep them tuned in. Because Trump is unpredictable, no matter how well meaning they may be the stories are mostly just someone's opinion based on facts designed to reach a predetermined conclusion that the end is near.

I read a story yesterday about the rules to survive the coming autocracy. I think there were six and to begin I've found that 99% of everything that has a specific number of rules or secrets for success is pure BS. Maybe some of you read it. I didn't quite get the 6 ways to survive part what I got out of it was the horrors the author lived though then applied to the coming dystopia. My conclusion was that if all the things predicted of Trump do come true the most sane advise is to save the last bullet for myself and that isn't a good way to think.

I'm trying to back away from most of that stuff. I'm reading more and trying to find more positive things to read and I'm computing less and no longer click on the news to get the latest outrage the first thing. I do find this site to be more positive and supportive. The stories and opinions are often much better thought out. But...It's hard. At my age, heath and economic circumstance there is no safety net below the safety net. I've always been a fighter and a survivor. As a reader of history I know that people have survived much worse and we will get though it and come back stronger but my resilience isn't what it once was.

Hope your wife is feeling better. Thanks for bringing up an important and thoughtful topic.

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You're right, Yellerdog, that all of us are subjected to a constant barrage of propaganda to keep us under control. Liberals are no less under assault than conservatives, and the past year or so has seen that assault significantly amplified. "Fake news" is the latest Orwellian effort to keep us on the drug corporate media deals. As if the people decrying this phenomenon have any room to talk....

The first step to recovery is admitting that there's a problem. Welcome to the recovery house. We may have our faults and limitations here, being fallible human beings, but at least we see this basic truth and can support each other going forward. The next four years won't be as rosy or as hellacious as the propagandists would have us believe. If we stick together we can find ways to get through it, and to make a difference. Wonderful writing like Steven D has graced us with will be a big part of that survival process.

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MsGrin's picture

yes. yes the Dems do also pay folks to create fake news. it was a part of David Brock's strategic plan to get his girl in the white house, and frankly, he bragged about paying trolls to pester posters on blogs and on social media (a million $$ was the number he threw around at one point - who knows what that became with nearly a billion of Superpac money to throw around...) and he turned at least a couple formerly neutral organizations into propaganda mouthpieces (Blue something Review and then he had CREW's claws removed since they had an active court case about the State emails from way back... Judicial Watch picked the case up where they left it off and made us all aware of what CREW nearly exposed).

Were the Dems just doing it because David Brock moved across the aisle to be slimy for 'us' instead of them? Perhaps POLITICO will do a dive on that at some point.

Yes - find more positive things. Even though it's uncomfortable to know this, it is good that it is known.

Best of luck with everything - I, too, check the safety net for holes on a regular basis. I've nearly slipped through several times and may well yet. For now, I'm hanging on.

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'What we are left with is an agency mandated to ensure transparency and disclosure that is actually working to keep the public in the dark' - Ann M. Ravel, former FEC member

Lily O Lady's picture

compassion consciously we can begin to overcome contempt and even be an example for others.

It's a shame that healthcare workers can't exhibit compassion as a default emotion, but overwork and stagnant pay can cause burnout of people in caring professions. Our lives are made more and more difficult by TPTB which makes us easier and easier to manipulate.

You're right, Steven, we do need to deal with one another without contempt. Compassion is hard to have, even for ourselves sometimes, but it would help immensely in our daily dealings.

I'm sorry your experience in the ER was so awful. Prejudice is another negative emotion that keeps us divided and distracted. I mean "prejudice" in the broad sense of the word, not merely racial prejudice, but all pre-judgements.

I imagine that it evolved in us as a survival mechanism so that we could make up our minds quickly in a life-or-death situation. Now, however, it can lead us to make choices that are not vital and which narrow our lives considerably.

In the ER, though, they do make life-or-death decisions for others though not for themselves. Their decision-making needs to be based on much more sophisticated input than primal instinct can provide. Stressed employees (which our "healthcare" rather than "medical" system creates) probably fall back on those primal instincts of prejudice and tribalism (us against them). This in no way excuses their behavior, but rather counterintuitively, introduces compassion for those lacking compassion for your wife.

I've experienced prejudice at the hands of medical/healthcare people an untold number of times either personally or directed toward a family member. It is frustrating and delays or can even prevent treatment. I can imagine your anger and frustration as the ER staff proceeded to dismiss and even harass your poor wife rather than acknowledge her suffering and need. I'm glad you found a way to create the opportunity for compassion in the ER and hospital staff. I'm sorry that you have to. Our capitalist consumer society has put us all there.

As I said, you are right Steven, we do need to work against contempt. That will be hard because we will need to exercise compassion for those who show contempt for us.

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"The object of persecution is persecution. The object of torture is torture. The object of power is power. Now do you begin to understand me?" ~Orwell, "1984"