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Flipping Off the Abyss

I had lost all faith in the medical establishment the last few years, which created a conundrum with my diagnosis of rectal cancer. Do I put myself in the hands of those that I no longer trust? Or do I opt for alternative treatments?

I opted for conventional chemo and radiation therapy. To me that gave me the best odds of recovery.

I had several friends and relatives recoil when I told them I was going the way of conventional treatment.

"You know that you're being poisoned, right", said my brother.

"Are you letting them poison you?", said a good friend as he turned his head in revulsion.

I responded: "Before my diagnoses I would have said the same, but reality hits home when it happenes to you personally".

I agonized over the different options and decided that conventional treatment gave me the best shot for survival. Sure, chemo/radiation takes it's toll and actually worsens things for certain individuals, but a lot has to do with the overall health of the patient and I, at 71 years old, am in good shape and otherwise healthy.

I made my decision and never looked back knowing full well what I was up against. I was positive then, as I am now, that I will survive this setback. I keep my mind occupied on other things and refuse to succumb to the fear and depression that a diagnosis of cancer can lead to.

As otc opined and I adhere to: "Fuck-a-tumor".

My initial MRI categorized my condition as Stage 3c which means that the mass is localized to the rectum and possibly 1 to 3 nearby lymph nodes, and has not spread to any other organs or parts of my body. I was relieved and felt lucky that it hadn't spread and it wasn't classified as Stage 4 cancer, even though Stage 3 is considered advanced cancer.

My oncologist set up an eight session protocol of oral chemo therapy, (pills I take at home, three in the morning and three at night) in conjunction with a chemo infusion at the hospital every two weeks. Each session consists of one week of infusion and pills followed by a week off to recover. I just finished session six and next Monday I start session seven.

There hadn't been much to report about my progress without proof of data and that's why I've been silent about it, although I started feeling great after about the second session. The symptoms all but disappeared and the chemo was barely affecting me. I hadn't felt that good for about a year. In many ways my body was telling me that the tumor was shrinking without the benefit of any tests. That catapulted my positivity and confidence in my treatment decision.

About two weeks ago I had a secondary followup MRI to monitor the progress of the treatments. Everything was positive.

The mass has shrunk by over 50% after a little over half way through the chemo treatments. The cancer was down-staged to Stage 3a. All the other clinical data was good. I knew that was the case as my body was telling me so, but now I had data driven proof.

I still have sessions seven and eight to go through and then three weeks off to let my body recover. Then it's six weeks of radiation and more pill form chemo and then a reevaluation of the progress.

The goal is to shrink down the tumor until it is virtually gone and then what's called a "watch and wait" protocol. Watch and wait is being used by more and more oncologists where the area is closely monitored for possible recurrence rather than going straight to surgery. According to my oncologist 30% of eligible watch and wait patients have no recurrence and can forgo surgery. Other cancer hospitals say up to a 50% non-recurrence rate. If recurrence is detected then it's immediately off to surgery.

I sure hope so, because non-recurrence means a normal life and surgery means a permanent colostomy.

I appreciate all of the well wishes from the membership, especially studentofearth for taking over the Friday Open Thread while I traverse this malady. I have one more thing to ask of you: Keep fingers and toes crossed that I cross the watch and wait threshold. I have no doubts that I will.

Anyway, Fuck-a-tumor!

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Comments

I tactfully ran this by my oncologist and of course she poo-pooed it being the corporate doctor that she is, so I took it upon myself to surreptitiously help myself:

NIH: PubMed

Kim Iverson and Dr. Makis

I'm taking it in conjunction with the chemo and radiation therapy and I'll use it to keep the cancer at bay if I reach the "watch and wait" threshold.

I considered the full protocol without chemo/radiation, but I wasn't convinced that it would work, so as I said in the essay, I opted for the more proven conventional therapy.

Does it work? I don't know, the jury is still out on that. But I'm convinced that it is safe and decided it's worth a try.

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10 users have voted.

@JtC she had no reason to stop her patients from doing alternative protocols. She was unconvinced they helped, but had no scientific evidence they harmed anyone and was completely open to studying trials. She said nothing discouraging, then complimented my cute shoes.
Folks, they were cute.

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1 user has voted.

"We'll know our disinformation program is complete when everything the American public believes is false." ---- William Casey, CIA Director, 1981

Dawn's Meta's picture

JtC, I'm so happy for you and OTC. You deserve the very best outcome.

I study a lot of alternative solutions and have seen some people are trying your secret along with Fenbendazole and Menbendazole per Pierre Kory and others. I resisted suggesting it to you as I figured you were inundated with many potential solutions. Your drive for a positive outlook is commendable.

Just recently I did stumble onto the use of Chaga, a mushroom or mycelium from Birch forests trans Taiga, for diminishing inflammation due to chemo and radiation. If you would like I can look for the article and send a link. It sounds promising.

Thanks so much for letting us know how you are doing. It means a lot to us.

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8 users have voted.

A society grows great when old men plant trees in whose shade they know they shall never sit. Allegedly Greek, but more possibly fairly modern quote.

Consider helping by donating using the button in the upper left hand corner. Thank you.

@Dawn's Meta
I've always been open minded about most things and after much research I decided to give it a whirl. There's actually a lot of info out there if one wishes to look for it.

My main concern is the dosages. It's virtually impossible to find proper dosages used in conjunction with conventional therapy, so I keep the doses relatively small because I'm concerned about all of chemicals that my kidneys and liver have to process. I know the Tippens protocol stresses large doses, but that's for his protocol by itself and not in conjunction with conventional therapy.

The more I research though, the more I'm convinced it works.

Thanks again. A support team is a helpful necessity, that includes spouse, family and friends, and the c99 community is a big part of the support team.

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6 users have voted.
orlbucfan's picture

I've been keeping tabs on you through otc. She's doing a terrific job reporting back to all of us. Smile Give her lots of hugs!! I've lost too many dear oneds to the Big C(urse), so following your-getting-better has been great for my spirits (agnostic and all--LOL). Rec'd!!

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7 users have voted.

Inner and Outer Space: the Final Frontiers.

@orlbucfan
yes, otc is a strong woman and has my back through thick and thin. I don't know what I'd do without her.

The c99 community is no slouch when it comes to support as well.

With her, friends and family and the c99 community support team, I know I've got this!

Thanks again.

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10 users have voted.

I was and remain skeptical of "modern" medicine. But when the Dice are in your own hand, all you can do is roll with it. So I took a leap of faith and gave no backsass to the surgeon and his team as they cut into me. Lady Luck shined on me and I have had no further problems with my colon.

Who knows anything for certain in this Age of Bullshit? I wish you good luck as you fight for your health.

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9 users have voted.

I cried when I wrote this song. Sue me if I play too long.

@fire with fire
having gone through it yourself you understand what I've gone through and continue to go through.

Although I hope to forgo surgery I prepared to do what ever it takes to survive. I can't check out yet, I have too many folks that rely on me.

So far so good, brother.

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8 users have voted.

you are wonderful.

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8 users have voted.

@Linda Wood

you are wonderful.

As you are yourself!

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7 users have voted.
lotlizard's picture

treatment for his cancer, so it sounds like you are proceeding with the maximum wisdom possible in such fraught circumstances.

May you be energized and lifted up by every healing, loving, and caring force in the universe, a.k.a. God / The Gods, in this difficult time.

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7 users have voted.

@lotlizard
I'll take good will where ever it may be found.

I choke up from the support I receive.

Thank you.

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6 users have voted.
usefewersyllables's picture

I’m certainly pulling for you. Keep on keeping on, doing what you are doing that is working!

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6 users have voted.

Twice bitten, permanently shy.

@usefewersyllables
I'm in it to win it!

Thanks for your support!

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5 users have voted.
QMS's picture

.
wishing you the best.
Full recovery in time.

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6 users have voted.

Zionism is a social disease

@QMS
I look at it as a detour, I'll work my way around it.

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5 users have voted.
soryang's picture

So glad to hear you're making good progress with your treatment! I used to read true life survival stories a long time ago as part of a job I had. You're right there with the right attitude.

Thanks to you and OtC for sharing your experience. Be strong!

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5 users have voted.

語必忠信 行必正直

@soryang
no quarter!

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4 users have voted.
janis b's picture

For as long as I’ve known you, your steadfastness and dedication has been a special feature of your life. I’m so happy for you and your loved ones, including us here. May you always continue to live life to the fullest.

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5 users have voted.
Lookout's picture

We just have to keep on trucking...
OIP-709171501.jpg
Keep on keeping on and getting better!

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4 users have voted.

“Until justice rolls down like water and righteousness like a mighty stream.”