Stroke Took Place One Year Ago Today

I first noticed that something was amiss when I got out of the shower and looked in the mirror -- my face was beet red and my eyes were as big and round as silver dollars. The least disruptive part of the experience is that there has never been so much as a hint of physical pain. I did not know it was a stroke for two days as I inexplicably kept bumping into immovable objects. While driving, I found my car rolling on the left side of the road.

I thought it was vertigo and two days into the event, I tried to book an appointment with a doctor, but the lady on the phone told me to hang up and dial 911. The Fire department showed up and my blood pressure was something like 220 over 120. They took me to Cedars Sinai Hospital where I resided for one week before being transferred to The California Rehabilitaion Institute. I existed there for three weeks.

I related some of this story a few weeks later with Inside the Belly of the Beast and 30 Months in, The Tally.The most significant fact that I did not relate in either of those diaries last September, because I did not know it yet, was that I had lost at least 50 pounds while in the care of Modern Medicine. I had been overweight for most of my adult life -- never morbidly obese, but always at least ten pounds over the "recommended" weight for my height and body type, and usually 20 or 30 pounds too fat. I had not weighed myself in years, but I figured that I had lost some weight during the pandemic and my estimated poundage as of last July 26 was 220 pounds, down from my highest ever scale reading 20 years or so ago -- 240 pounds.

Now ancient history! As of mid November, I weighed in for a doctor's appointment at 167 pounds. My wife now tells me that I looked like a concentration camp inmate when I first got out of the hospital. The skin around my elbows and knees were shriveled up and hung loosely off my bones.

By May, my weight was up to 175 pounds. Going by how my new pants fit -- I had to buy them after losing six inches off my waistline. I don' think I have gained much weight since then.

How could I lose so much weight so fast?

They brought me something that they called food three times a day. I suspect that the stroke impaired my ability to swallow, and almost every meal came with a pile of pills and capsules that were a serious challenge to get down my throat and ruined what little appetite I had. I tried to ingest at least some protein during each "meal."

I have a hard time believing that my de facto fasting was taking 12 pounds a week off my bones. I also got hit with diarrhea for the last two weeks of my stay. Whatever hospital bug that gave me the shits is possibly responsible for knocking a dozen or more of those pudgy pounds off my frame.

One year into this re-creation of a human being, I now walk at least ten miles every week, and at least a mile every single day. My left-hand fingers have sorta remembered where the typing keys are. I still have way to go before I can think of myself as "normal."

Who is?

Over all, the experience has driven me much further into my skepticism about the Health Care Industry. The bureaucracy cared more about isolating my positive test result than about treating me for the supposed infection -- or about the stroke that put me under their care.

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albeit somewhat slimmer
I'm afraid EL has also just experienced
a "wee stroke"
hope he is also on the mend

I second your estimation of the healthcare industry
good luck and thanks for sharing

Q

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usefewersyllables's picture

Nobody ever needs to know the feeling of your brain sending out perfectly reasonable instructions, and your body just not even coming close to carrying them out. There is no more vulnerable feeling, no more helpless feeling, no more disorienting feeling, than having your body of yay-how-many years simply ignore your brain. I'm so sorry that you had to go through *that*, let alone having the medical community then pour gas on the fire.

I was so lucky that my neurovascular event was as a result of a dive accident, and not just "life". I had the ability to call upon experts through my (supplemental and extra-cost) dive insurance, and they got me the treatment I needed right away. They saved a goodly chunk of my brain, and I'm incredibly grateful for my good fortune. Most folks never have that advantage, and I'm grateful for it every day as I work and live.

I wish that you, and everyone else who might ever experience such a thing, could have the same support I had. I'm glad that you are coming through it. And if you need help in kicking the asses of your doctors, let me know- I'll buy my own plane ticket.

For anyone else who is still reading: if you possibly can, *scream* for hyperbaric oxygen treatment if you are exhibiting stroke symptoms. It can't hurt, and it might help get a little oxygen to the insulted part of the brain- maybe just enough to limit the damage...

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Twice bitten, permanently shy.

@usefewersyllables Sincere thanks for the offer. I don't even know what the California statute of limitation for this kind of claim is. The fact is that I quit active practice of the law because I really dislike the process of litigation.

I'm glad that I survived the system. Case closed.

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I cried when I wrote this song. Sue me if I play too long.

snoopydawg's picture

.

I can imagine how scary that time was for and I’m sorry to hear how you were treated. Our health care sure leaves a lot to improve on.

I was very self conscious about my memory problems after my head injury because no one explained why I was having trouble remembering. Once my doctor explained how normal it is to have problems after one I started shrugging off my problems because I was finally aware of why I had problems for decades and realized how lucky I was that it wasn’t worse. One thing that has helped me do better is writing comments. When the blue blog first started I’d read a comment and when I went to respond I had already forgotten what it said and would have to go back and read it again numerous times….now that is in the past. Hopefully you will continue to improve daily.

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janis b's picture

@snoopydawg

to have regained and strengthened your memory.

You remind me of how bad my memory is because I still have to go back and reread the comment I want to respond to, and as far as I know it's not a result of a head injury. I think I was born this way, but maybe I just don't remember ; ).

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snoopydawg's picture

@janis b

I think I was born this way, but maybe I just don't remember

One thing that still happens is how my thinking skills are still off. It’s hard to explain, but I wanted to get Sam out of town for the 4th but since it wasn’t till Tuesday I planned on leaving that morning. Just before the weekend I realized that people would be shooting off fireworks that weekend and kicked myself for not realizing it earlier. But I was thinking too far ahead about various things that were already plannend and I got confused. I still forget a lot of things just because of how my brain works, but I usually laugh it off. It is what it is and I’m just know how lucky I am that it’s not worse. Right after the injury I would have meetings with coworkers and the next day have no knowledge of it happening. People would come and tell me what they came up with and I’d ask what they were talking about…. Hence my self consciousness. Or make plans and then not show up because I’d forgotten about it. I just wish I had understood the problem earlier. Some times I’ll write a comment in the morning and then be surprised when I read it in the evening because I’d forgotten I wrote it. So it’s still happening, but….? People tell me I should write notes to myself, but what good does that do if I’ve forgotten that I wrote them? Smile

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janis b's picture

@snoopydawg

I have a very dear friend who had a head injury 9 years ago. Certain of her capacities were shook up. Even though she still has some challenges, she not only functions well but is in some ways even stronger. I think the hardest part for her along the way was experiencing the inability or lack of understanding from a few close friends. They seemed to expect that once she recovered physically she should have been her usual self in all other ways. I think the brain is truly a mystery.

About notes to oneself, I learned a great trick ... I write the really important notes to remember on paper and put it on the floor where I can't help but step over it.

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janis b's picture

Thank you for relating your experience, and I'm glad to hear how well you've done despite the obstacles. You must have quite a strong will, and it sounds like you also follow your heart. I think that's a strong combination, and your choice to close the case is probably a healthy one.

All the best

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you are officially an ass kickin' bad ass.
Amazing progress, and you survived a long hospital/rehab stay.
Good for you!

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"We'll know our disinformation program is complete when everything the American public believes is false." ---- William Casey, CIA Director, 1981

Sima's picture

Completely agree with your assessment of the medical 'industry'. It's sad, but true, they don't even feed patients well. Years ago, I was in the hospital because of a severe head injury, broken neck, coma, etc. When I was finally able to leave, I had developed a lifelong hatred of balogna, which still continues. Why? Because that was all, it seemed, they fed me. This was in the 70's. Can't imagine it now.

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If you're poor now, my friend, then you'll stay poor.
These days, only the rich get given more. -- Martial book 5:81, c. AD 100 or so
Nothing ever changes -- Sima, c. AD 2020 or so

snoopydawg's picture

@Sima

First time I broke my jaw I was on a liquid diet of course so the kitchen sent up a soft boiled egg. Fortunately the nun in charge of nutrition was a good family friend and she took over my needs. Never thought cream o wheat could taste so good.

But now with all the hospital cuts to budgets I’m doubting that they even have nutrition specialists anymore. One reason why patient care has become so bad is because nurses have too many patients to look after and corners get cut when there’s not enough time in the day for the workloads. And gawd only knows how bad nursing home patients are treated these days. I used to visit lots of nursing homes in the 80's and wasn’t very impressed by their care. Now after so many nurses got fired or burned out during Covid…but of course the elite will get 5 star treatment.

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Sima's picture

@snoopydawg
So they sent a boiled egg. I am left without words...

And I think you are right, they do not have nutrition specialists anymore. Gads!

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If you're poor now, my friend, then you'll stay poor.
These days, only the rich get given more. -- Martial book 5:81, c. AD 100 or so
Nothing ever changes -- Sima, c. AD 2020 or so

Hope you are feeling better and make a full recovery.

As someone who despises hospitals, (had two visits last year), my advice is to stay out of them as much as possible, except if you think that you might be having a stroke. Having worked with populations of people, I had to take Basic Life Support, (BLS) classes, several times.

If you are possibly having a stroke, there is a drug which they can administer to you. But there is only a 3–5-hour time frame for it to work. It can literally reverse 99% of the effects of a stroke.

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snoopydawg's picture

@Enchantress

but it can’t be used for all strokes. I think it’s used for an ischemic stroke caused by a blood clot and that doesn’t bleed into the brain. If it’s a hemorrhagic stroke then it has leaked blood and plasma into the brain which causes more damage than the ischemic stroke and using it would cause even more damage by leaking even more fluid.

I used to do tests for people who had strokes in the eye and other diseases to determine how badly the retina was damaged and to see if the retina needed laser treatment to keep the damage from getting worse. It was a fascinating career that I miss very much. Eye health can tell you a lot of what is happening in the body. I left the field just as digital cameras were coming out which freed photographers from hours in the darkroom. Good and bad because I loved working in the darkroom, but the doctor can see the test results immediately and not have to wait for the films.

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usefewersyllables's picture

now, 15+ years after that neuro incident, is that I'm starting to sundown.

Both of my parents exhibited Sundowner's Syndrome before they passed. Both had had strokes, and both had advancing Alzheimer's as well. Noticing it in myself is not pleasant: it's pretty clear that I have a genetic predisposition to it anyway, and it is equally clear that pissing off that pint of blue mud was a bad idea. It's noticeable enough to me that I know to get all my important mental tasks out of the way well in advance of sunset, because I really can't focus properly after dark (except, thank Gawd, for playing music- so far, anyway). It is repeatable, and relentless. I like the idea of leaving notes for myself on the floor, and intend to adopt that mechanism (assuming that I can keep my wife from picking them up and throwing them away...).

It is another odd sensation, for sure. Bonnie Raitt had it right: "Those lines are pretty hard to take, when they're staring back at you...". Still, it beats the hell out of the alternative, and it gives me an excuse for being essentially useless after work. (;-)

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Twice bitten, permanently shy.